A doctor told Evgeny and his wife, “I fear that your baby has Down syndrome,” barely one minute and forty-nine seconds after their son was born.
“I didn’t know what to do when I learned that my son might have Down syndrome,” the father said. I assumed that my wife would have a more difficult time, therefore I assumed it was my responsibility to aid her while blocking off feelings and thoughts.
“We were promised the analysis results in a few days, so I decided not to say anything to her until then.”
He went on to say, “I recall leaving the hospital and crying, but only briefly, after learning that my son has Down syndrome. I felt a bit guilty of my tears later. After all, nothing had truly changed in my life.
“I had two arms and two legs, but my professional expertise had not diminished at all. I had everything on my side, including motivation, activity, interest, and so on. Everything went as planned, and my child was born. However, the newborn is special, and his life and destiny have immense value. And I am screaming right now! There is a selfishness to this! Is this not equitable? No, I am responsible for it. It’s clear that the probability of you having an amniocentesis was minimal, but nevertheless. You accepted parental responsibility because you desire a kid. Finally, there are various alternatives: autism, cerebral palsy, genetic defects, etc. And, as I realized later, down syndrome isn’t the worst.
That that evening, Evgeny began researching Down syndrome.
He went on to say, “I discovered that individuals with Down syndrome can live and work independently in Europe and are well-socialized.” “But that didn’t change the decision I had already made.”
The new father had no option but to remain with his son. Unfortunately, his wife did not share his thoughts.
said, “It would be inhumane to leave my son in an orphanage at any point in time.” After their divorce, Evengy is now parenting Misha on his own.
“When a child is born, he asks the outside world, ‘Am I needed here or not?’” he said. And I firmly say, “Son, you are needed!” Being around a regular man, even when we are alone, is simply natural. I must emphasize that I am an ordinary man, not a superman.
Evegny seeks to raise awareness of Down syndrome so that no prospective parent believes having a child with the condition is a punishment or a handicap that cannot be overcome.
“I want all the articles about Mishka and me that are being published now to convey and instill that idea to society,” that’s what he told Bored Panda. Furthermore, by providing an example, I hope to encourage and elevate those who are or will be in similar situations to me. I make an attempt to communicate with individuals who live locally and write letters to those who live further away. I hope that individuals who are now struggling, like we were, will learn about us. Be fearless! Everything will work out OK.
I’m not sure about you, but I think people like Evegny deserve a lot of recognition. Misha is really blessed to have him as a son; he is a truly amazing man.
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