“Blaize and I were not aware of this condition, nor had I ever met someone born with a macrostomia,” said Adelaide’s Vercher. “So it came as a huge shock.”

It wasn’t just the parents who were shocked. Doctors were also unprepared to handle a baby with bilateral macrostomia.

“This made the experience all the more worrying as it took several hours for a doctor to give us an answer. With this came more difficulties as the hospital had little knowledge or support for such a rare condition.” She added, “All I could think about as a mother was where I went wrong.”

But doctors assured the concerned parents there was nothing they could have done differently. Cristina harbored fears that she had somehow erred during her entire pregnancy or had “caused” her daughter’s condition.

She confessed: ”All I could dwell on as a mother was where I might have made a mistake.” Nonetheless, after days of genetic testing and scans, they received reassurance that this issue was entirely outside their influence and that they bore no blame for it.

What the Muchas could do, was refocus their attention on helping Ayla live with her condition, which also impacts functionality, like with latching and suckling.

For this reason, parents are often encouraged to have surgery performed on their little ones.

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Author: awestories24.com